A Surprising Start to Life
Every parent dreams of the day their baby is born, imagining the joy of hearing that first cry and holding their child for the first time. But sometimes, that special moment brings unexpected challenges.
That was the case for Mary and Brad Kish of Illinois. In the late 1990s, they welcomed their daughter Michelle into the world after a smooth pregnancy and a healthy delivery. But when Michelle opened her eyes for the first time, doctors noticed something unusual. After extensive testing and consultations with a geneticist, Michelle was diagnosed with Hallermann-Streiff Syndrome—a rare genetic disorder with only about 250 known cases worldwide.
Facing Unique Challenges Head-On
Michelle’s diagnosis came with significant challenges. Of the 28 known symptoms associated with Hallermann-Streiff Syndrome, Michelle has 26. The condition, which affects roughly one in five million people, can impact many parts of the body. In Michelle’s case, she also has dwarfism. Although she’s two years older than her sister, she only reaches her sister’s waist in height.
To manage her condition, Michelle relies on several medical devices, including a respirator, hearing aid, visual aids, a feeding probe, and a motorized wheelchair. Her health needs have meant frequent hospital visits and ongoing care throughout her life. Now 25 years old, Michelle is often mistaken for a child because of her size and appearance.
A Remarkable Young Woman with Big Dreams
Despite the obstacles she faces, Michelle is a shining example of resilience, hope, and determination. She looks forward to experiencing the milestones many young women do—like dating. She says she hopes her future partner has long hair, but she’s not too concerned about height.
Michelle also dreams big. One of her greatest goals is to become a doctor—an ambition that reflects her deep compassion and desire to help others.
